The Grove Launches #CHANGE4BATTEN Initiative for Rare Disease | NBC Southern California

The Grove Launches #CHANGE4BATTEN Initiative for Rare Disease

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    NEWSLETTERS

    The Grove has kicked off a month-long initiative, #Change4Batten, where 100% of the change thrown into The Grove fountain throughout the month of August will be donated exclusively to The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease.

    The foundation was recently launched to raise an estimated $10 million necessary to fund urgent medical research to save the lives of children devastated by this rare and fatal neurological disease. The Grove will donate one dollar for every photo uploaded by a guest throwing change into The Grove fountain and tagged with the hashtag #Change4Batten.

    In June 2015, Kristen and Gordon Gray launched The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease. Its initial, achievable goal: to raise the estimated $10 million to fund accelerated medical research to identify the most effective treatments, stop the progression of the disease and, potentially, find a cure. Both of their daughters, Charlotte (age 4) and Gwenyth (age 2), were recently diagnosed with this rare and fatal neurological disorder. The foundation’s efforts can help save Charlotte, Gwenyth and thousands of other children like them. For more information, visit www.curebatten.org.

    WHAT IS BATTEN DISEASE?
    A rare, inherited nervous system disorder, Batten disease typically begins in childhood. It is the most common form of a group of disorders known as neuronal ceroid lipofuscinosis (NCLs), which occur in an estimated 2 to 4 out of every 100,000 live births in the U.S. While NCLs are rare, they often afflict more than one person in families which transmit the defective genes.