SoCal Man With ALS Shows Why Ice Bucket Challenge Matters in Viral Video

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    NEWSLETTERS

    YouTube

    It starts off hilarious: A jocular guy in a bikini challenging Ellen DeGeneres and Miley Cyrus to the Ice Bucket Challenge.

    Then, it gets personal, real and heartbreaking.

    Anthony Carbajal, a Murrieta native and owner of a Temecula wedding photography business, shares in a new YouTube video about a family history of ALS and how he was diagnosed with the debilitating disease earlier this year at age 26.

    “I hate talking about it. That’s probably why no one talks it. Because it’s so challenging to watch,” Carbajal says in the video. “No one wants to talk about it. They don’t want it to ruin their day.”


    His YouTube video has reached more than 4 million views in just three days and has been spotlighted by Time, BuzzFeed and The Huffington Post, among other media outlets.

    The video is a challenge to naysayers of the ubiquitous ALS Ice Bucket Challenge — those who express annoyance that the craze is filling up their Facebook newsfeeds.


    “I promise your newsfeed will go back to cat videos and ‘Let It Go’ covers,” he says. “But now, for once, the ALS community has the main spotlight. And for once in my entire life, I’ve seen it in the forefront.”

    “Eventually I won’t be able to walk, talk and breathe on my own,” he says. “And that’s the real truth of what ALS is.”


    Since the Ice Bucket Challenge took over the Internet, the ALS Association has received $41.8 million in donations from July 29 to Thursday. That's compared to $2.1 million in the same time period last year.

    You can watch the video here. (Warning: It contains some profanity.)
     

    His YouTube video also drew the attention of Ellen DeGeneres, who accepted his challenged and tweeted this morning: