rare disease

Niemann-Pick is a disease and Adrabetadex is an experimental treatment you likely might not have heard of, but what can be familiar to many parents, is the desire to do anything to keep their children from suffering.

Niemann-Pick is a disease that affects memory and is sometimes referred to as Childhood Alzheimer’s, but Niemann-Pick ravages the whole body. Darsha Philips reports for NBC4 News at 4 p.m. on March 4, 2021.

The California Live team was honored to tell the story of Cash Lee, a child who had a rare brain disease that nearly took his life until a Stanford physician stepped in.

Cash Lee’s story is all about courage, from his battle with a rare brain disease to his road to recovery with his parents. Danielle Nottingham has an update on his amazing journey.